A fabulous mom shared this poem on Circle of Moms and I loved it so much I wanted to post it on my blog! It's such a wonderful message! Hope you all enjoy! (I changed it from saying 'his' and 'he' to saying 'her' and 'she')

Heaven's Very Special Child

A meeting was held quite far from Earth.
It's time again for another birth.
Said the Angels to the Lord above,
This special child will need much love.

Her progress may be very slow,
Accomplishments she may not show.
And she'll require extra care
From the folks she meets down there.

She may not run, or laugh, or play,
Her thoughts may seem quite far away.
In many ways she won't adapt
And she'll be known as handicapped.

So let's be careful where she's sent
We want her life to be content.
Please, Lord, find the parents who
Will do a special job for you.

They will not realize right away
The leading role they're asked to play,
But with this child sent from above
Comes stronger faith and richer love.

And soon they'll know the privilege given
In caring for their gift from Heaven.
Their precious charge, so meek and mild,
Is Heaven's very special child.

By: Edna Massionilla
December, 1981

Here are a few pictures of London in her 'stander'. She's not too fond of it but she's getting better about spending time in it.Hopefully we'll see some good results from it!

Did I speak too soon...?

Well, for a while there, London was going two to three days between seizures and I was so thrilled I posted it- then she started having one nearly everyday! :( Did I jinx her? She didn't have one last night but she did end up having one early this morning. It wasn't too bad but it breaks my heart every time no matter what. I recently began reading and commenting on posts from other moms of kids with seizure disorders on Circle of Moms- it's been so great to hear all the supportive stuff they say to one another and to me! I'm hoping more people will join my blog page and share the same kind of support so if any of you know someone who may be interested- send them the link! :)

London had another seizure last night... she was sound asleep again and at about one in the morning it started. It was maybe 15 minutes long... but the spasms came so close together she couldn't quite take a good breath between most of them. It breaks my heart. Afterward, she seemed like she was going to fall right back to sleep so I went back to bed- then she started whining and getting fussy. I went in and tried patting on her back for a while and talking to her but nothing was helping. I was so tired I just started to cry. Luckily Thomas came in and held her and rocked her and gave her a drink so I could go back to bed. He's pretty good about that- he usually knows when I'm just so tired and frustrated that he needs to come take over. So far this morning she seems to be doing fine... I'll see what today brings...

Well London had a yucky seizure last night... she was sound asleep and woke up jerking then went about 20 minutes having her usual spasms. I could tell it was hard on her this time though because not only did it wake her up and probably scare her but with each spasm she was crying out. I can't think of anything that occurred yesterday or that she ate yesterday that might have triggered it- in fact she had a good day! Thomas was giving her 'raspberries' on her cheeks and she was really smiling about that- she even came close to laughing! It was really something else to see her act that way, REAL smiles are very rare for her and the only time she's ever laughed is in her sleep- and the last time she even did that was a long time ago. She's still got a cough and a stuffy nose so I guess we'll see what today brings and I'll try to keep posting updates more often!

Well London is pretty much completely off the Ketogenic Diet now... she's loving all the foods she gets! She seems to be going about 3 days between seizures but I'm hoping that some of her teeth that have been bothering her will come through and she'll be having even fewer seizures. She's also had a little cough so maybe when that goes away she'll have even fewer! :) She's getting so big too! I think she's gained a pound or so since being off the diet, which we expected. She's not rolling completely over but she loves rolling onto her side- sometimes I think she does it because she gets sick of everyone in her face all the time! :) We're still working on building up her muscles and trying to get her to reach out for things all on her ow... it's an ongoing battle but I'm not giving up! I can tell sometimes when I look at her that she knows what we're saying, she just can't communicate back to us... so I continue to have hope- I can see in her eyes that she's just like every other almost-two-year-old!